@kathythornjohnson Hello Kathy: I'm a volunteer mentor with Mayo Connect and I'd like to welcome you to this online patient support network. We are so glad that you have joined us. I especially appreciate your sharing about the help you received from Mayo Clinic in getting a diagnosis, that is great to hear. Congratulations as well on celebrating your 6th year survival anniversary. I'm glad to know that you have found support. Support, either in person or online is so important when you are dealing with a chronic illness. How are you feeling these days? Do you go to Mayo for periodic check-ups? Teresa

I have regular follow ups and scans every 3-4 months. I went on an anti anxiety drug this year. That helped. I'm stuck with Mayo as they have been awesome. I'm feeling hopeful. My doctors have me convinced that I need to look at my disease as a chronic condition. I stay on top of it. I have a wonderful support group of family, friends, and coworkers. I don't know how people without support survive this.

@kathythornjohnson I'm so pleased that you have such a good support network, that does mean everything. As we all learn from each other on Mayo Connect, what sort of encouragement or advice would you offer others with this type of diagnosis? Teresa

What I've learned during the last 6 years:*The actuality of my situation is rarely as awful as my imagination.*There is always reason for hope. What you hope for may change but there is always hope.*Dont believe everything you read on the Internet about your prognosis. Often, what you read on the Internet is best case or worst-case. We are rarely best case or worst-case. *When your situation is hardest remember that you can get through the next 60 seconds. Break it down as much as you need to. *If you are working with Mayo Clinic, you have world renowned doctors who see Sarcoma daily in your corner. Make certain you are at a sarcoma center. A regular oncologist may only see one or two sarcomas in their career. *Don't ignore your mental health. Ask for help getting through treatment and the fear following treatment. There are options. 

@kathythornjohnson What a wonderful reply to my asking you for some words of encouragement/advice to others dealing with sarcoma. You have covered many of the situations that we all encounter when we deal with a chronic illness, but especially those with sarcoma. Thanks so much! Teresa

@kathythornjohnson, Good Monday Morning. Thank-you for sharing your words of encouragement and wisdom. I am visiting you from the Transplant discussion group, to say that your beautiful statement is a testimony of hope for all of us.
Blessings to you as you continue your health journey'
Rosemary

I just was diagnosed with a myxoid liposarcoma in my left thigh. I am starting radiation today. I am so glad to hear of your 6 year survival anniversary! I look forward to celebrating mine. Did your recurrences happen in the same area?