← Return to Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
DiscussionSevere Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
Neuropathy | Last Active: 8 hours ago | Replies (8)Comment receiving replies
Replies to "Oh, ironically if I were to pursue the medically assisted death I would have to return..."
Connect

@megidigo I am so sorry to hear how badly you’ve been treated and all the trials you’re going through.
Your description sounds a lot like
Charcot-Marie-Tooth-Disease. Did your neurologist mention this possibility? Here’s some information about it. Please don’t give up hope. There may be some kind of treatment that can make it more manageable. Sending warm wishes.
https://www.mayoclinic.org/diseases-conditions/charcot-marie-tooth-disease/diagnosis-treatment/drc-20350522