← Return to Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness

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Profile picture for megidigo @megidigo

Oh, ironically if I were to pursue the medically assisted death I would have to return to the city I had to leave since I couldnt work. I dont think the person I talked to here took me seriously however my primary does. I have been denied many referals where I live now from my doctor who is still in my previous city home. I knew how bad the healthcare was from living here in the past and it was a fear of mine when I had to return here which makes living with this disease worse.

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Replies to "Oh, ironically if I were to pursue the medically assisted death I would have to return..."

@megidigo I am so sorry to hear how badly you’ve been treated and all the trials you’re going through.

Your description sounds a lot like
Charcot-Marie-Tooth-Disease. Did your neurologist mention this possibility? Here’s some information about it. Please don’t give up hope. There may be some kind of treatment that can make it more manageable. Sending warm wishes.
https://www.mayoclinic.org/diseases-conditions/charcot-marie-tooth-disease/diagnosis-treatment/drc-20350522