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If you have PMR do you remember your childhood illnesses?
Polymyalgia Rheumatica (PMR) | Last Active: 12 hours ago | Replies (11)Comment receiving replies
My 2 rheumatologists continue to vacillate for almost 2 years on whether I have PMR or not. R A or not. I am only meloxicam and fill in with various Tylenol products. I am in constant horrible pain. I had all the childhood diseases- measles, mumps, chickenpox and the childhood shots. Plus the single shingles shot. I had shingles in the mid 1980’s.
On 6/11/24 I had the first of two shingles shot. Threw me into this constant pain Plus my bones deteriorated so much that I had reverse left shoulder replacement on 10/29/25. My right shoulder is in painfully horrible condition. Docs insist I aged into this. I absolutely did Not! I was a feisty, very active 74 year old when that shot put me flat out! I was on kevzara but it tanked my WBC. Now, I am asking for either a return to Kevzara at 3 week intervals or Actemera. I have lost vision but my eye doctors (ophthalmologist and optometrist) say I don’t have GCA. Thankfully! I will see my Mayo rheumatologist soon -the third and last appointment as he cannot spend any more time with me. Sorry to whine so much but I am very tired of being in Flare 100% of the time.
Replies to "My 2 rheumatologists continue to vacillate for almost 2 years on whether I have PMR or..."
@susanlf Hello! I feel your pain! And I really mean that. YOU ARE NOT WHINING!! PMR is really awful for many of us who suffer from this condition/disease. Sure, at first Prednisone is wonderful. Like, OMG, I am cured!! Wrong! As I tapered off, it of course came back with a vengeance! It is now almost April of 2026. I started Prednisone one year ago, April 1st. Results: Woke up blind in one eye from an "unknown" infection, in July.! Underwent an emergency Vitrectomy the next day. I do have severe macular degeneration, and have been receiving injections for over 5 years with no problems, until Prednisone. My eyesight has only recovered around 60% in that eye. Then came osteoporosis in my neck, along with severe and constant headaches! Prednisone?? Then cavities under crowns. Another Prednisone gift?? So I am waiting for Kevzara. I, too, was a "feisty", small, very active woman. It is really difficult to deal with this on most days. And, BTW, thank you for warning me about the shingles shot. I had shingles in the early 2000's. My doctor says I should take the vaccine. So far I have resisted. God Bless You!
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@susanlf
I would think that the deteriorating joints would lead to an RA diagnosis. Is MS a possibility?