← Return to Is anyone suffering with Anti MAG neuropathy?

Discussion
framboise1 avatar

Is anyone suffering with Anti MAG neuropathy?

Autoimmune Diseases | Last Active: 2 days ago | Replies (34)

Comment receiving replies
Profile picture for mphaddican @mphaddican

I have a question on Neuropothy. My husband has Waldenstrom’s and Neuropothy. He was treated through Dana Farber. His results were good.
He has Neuropothy without pain. He cannot feel his feet although when I’ve tried to message his feet he reacts like I am tickling him. I find that feeling odd concerning what he says about no feeling.
Also when he elevates his feet the discoloration in his feet seems to subside.
Wondering what we can do for improvement.
Thanks in advance!

Jump to this post


Replies to "I have a question on Neuropothy. My husband has Waldenstrom’s and Neuropothy. He was treated through..."

@mphaddican Unfortunately, I do not have any suggestions for your husband. But who was his doctor at Dana Farber? I suffer from anti-mag pn and Waldenstrom's and am trying to get an appointment at Dana Farber. These diseases are so rare and unusual that I have found it very difficult to find doctors who are knowledgeable about these afflictions. Thanks in advance. Walter Cooke