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← Return to Chemoradiation Alone?
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@earle Thank you for that insight. I'm sorry to hear you went through great difficulty. I hope your weight is slowly stabilising and you are able to eat solid foods as well after the dilations?
I will try to continue gathering more information, so that I can share with her. As much as I 'd like for her to have the surgery, I have also come around patients sharing their experiences about how difficult the recovery is and some risks as well. Anyway, as much as I want her to recover and be around for as long as possible , I want her to make an informed and independent choice. I have also come to understand that every patient reacts to treatment differently and that this disease is truly unpredictable, I have decided to leave it at God's hands mostly.
Replies to "@earle Thank you for that insight. I'm sorry to hear you went through great difficulty. I..."
@butterfly58, how is your mom doing? How are YOU doing?
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@butterfly58 My weight is stable now. I gained about 10 lb back on tube feeding. I'm where I should be, which is about 20 under where I was when dxed. I eat normally now, but I will have one or two more dilations in order to feel totally comfortable. My opening is still on the tight side. I lost the 30 lb originally because I also resisted the tube until it was obvious I had to have it.
I had my latest PET day before yesterday and, as far as a scan can tell, I got a complete response to treatment. There is no sign of cancer in my esophagus and my lymph nodes. However, I have a tiny spot in my upper left lung lobe which showed increased activity. Originally, the doctors thought it was an anomaly from aspiration or the like. Now, however, it must be treated. Fortunately, the treatments are non-invasive, lasers or CyberKnife, just a few sessions. However, I'll just do as you've decided, and as I decided long ago - I'll leave it in God's hands...