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Chemoradiation Alone?

Esophageal Cancer | Last Active: 1 day ago | Replies (18)

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@lionsfan

I think she doesn't want tube feeding because of fear of the unknown, luckily she's been able to keep down liquids throughout and I do my best to make a plan for her nutrition and try to give her lots of protein, it was however challenging the last weeks of treatment. She is getting better since last week but still afraid of even trying solids or even soft foods, did you have this fear during transition?

It is already 55 days since her treatment , and she is scheduled to have her first scan this week. Hopefully she will able to make up her mind after the results once she knows the outcome of the treatment.

I'm happy for you that even after the chemo radiation worked, you were able to quickly decide that surgery was the best option.

I wish she had that sort of clarity. I imagine its just not an easy journey all together.

I will continue to do my research. I have read some trial outcomes on salvage surgery etc.

I don't know if this is relevant. But she was told she has stage 3, and spread to one lymph node. No further metastasis.

Thank you so much

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Replies to "@lionsfan I think she doesn't want tube feeding because of fear of the unknown, luckily she's..."

@butterfly58
Actually, I was looking forward to getting back to eating. I didn't have any problems initially, about 4 months post surgery, I developed gastroperesis, or paralysis of the muscles that move food through your new stomach. Doctors thought it was due to damage to my vagus nerve. Eventually, it got better and I eat small, but more frequent meals. Don't get me wrong, the recovery from surgery has been difficult and includes sacrifice, but I'd still choose the same options. I too was stage 3 advanced, so similar to your mom. Best to you and your mom.