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Started PRRT treatment: Anyone experience tumor markers increasing?

Posted by rhb18 @rhb18, Feb 25 6:43pm

I had my first PRRT treatment in mid Jan and got my CgA blood work back today which shows an increase in my numbers. I was expecting a decrease. My oncologist said it’s not unusual for the numbers to go up after the treatment due to a tumor flare. Has anyone else experienced this? Thanks

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Teresa, Volunteer Mentor | @hopeful33250 | 6 days ago
In reply to @jayace2430 "Hi, my wife will be meeting with the doctor tomorrow regarding NETS metastasizing in the small..." + (show)
Profile picture for jayace2430 @jayace2430

Hi, my wife will be meeting with the doctor tomorrow regarding NETS metastasizing in the small intestine area. It may require surgery. Has anyone gone through this procedure before? What are the expectations?
I have been able to keep my wife to embrace the present moment. ( Gratitude and Thankfulness). Presently, she has been feeding off my positive energy.
I'm reaching out for additional optimistic feedback, please.
Thanks-:)

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Hello @jayace2430

I hope that your wife's appointment went well and that you received some helpful information on what to do next. When it is convenient, please provide an update.

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sophiarose | @sophiarose | 5 days ago

Yes I did!
My markers were increased even after my second treatment and my oncologist said it is normal and I continued to the end
I have been stable since November 2024
I am taking octreotide every 28 days since my last treatment
My oncologist also said as long as my bloods were good to continue it is normal
Don’t give up
Good luck

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mmar2025 | @mmar2025 | 5 days ago
In reply to @kevinmonroemi "Sorry you got sick! But happy to hear you are finally going to get the PRRT...." + (show)
Profile picture for kevinmonroemi @kevinmonroemi

Sorry you got sick! But happy to hear you are finally going to get the PRRT. I can’t imagine having to wait that long. I was diagnosed in May 2021 with Pancreatic primary grade 2 stage 4. Good luck with the treatment!

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@kevinmonroemi You indicate you were diagnosed in May of 2021 with Grade 2/Stage 4. I was diagnosed in August of 2025 with the same. Can you tell me what has been done for you? Was it diagnosed as well-differentiated and what was your ki-67 number? I am hoping that your time frame is something I can look forward to.

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kevinmonroemi | @kevinmonroemi | 4 days ago
In reply to @mmar2025 "@kevinmonroemi You indicate you were diagnosed in May of 2021 with Grade 2/Stage 4. I was..." + (show)
Profile picture for mmar2025 @mmar2025

@kevinmonroemi You indicate you were diagnosed in May of 2021 with Grade 2/Stage 4. I was diagnosed in August of 2025 with the same. Can you tell me what has been done for you? Was it diagnosed as well-differentiated and what was your ki-67 number? I am hoping that your time frame is something I can look forward to.

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@mmar2025

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