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Oncocytic Cell Carcinoma with angioinvasion
Thyroid Cancer | Last Active: 4 days ago | Replies (26)Comment receiving replies
Hey Erin!
Hope you have been keeping well.
I did have my scan ( this past Thursday)
I had to have the Thyrogen shot on Monday.
I did have to follow the LID diet ( 🤢)
Not much news really. They have changed my risk stratification from “intermediate “ to “intermediate-high” and have determined that there is metastasis in the lymph nodes.
I need to stay on the LID diet for now, as I am due another scan on the 9th April ( so Thyrogen on the 6th again)
Very frustrating as I have no idea as to why they need another scan. I guess I shall wait and see what my “lucky packet “ holds…🤣
I hope that you are well on the mend and not having prolonged side effects from the RAI.
Take care of yourself ! 🦋🤗
Replies to "@ejjb Hey Erin! Hope you have been keeping well. I did have my scan ( this..."
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@samjdp
The low iodine diet was the worst!!! Sorry you have to stay on it this long! The lack of communication these Dr's have seems to be a common factor, regardless of the country! You'd think for as smart as they're supposed to be, common sense with communication skills would be a given, guess not.
I've started prepping a list of questions before I go into appointments, and then at the appointment, I ask for an email address where I can ask follow-up questions. Getting the email from them to ask follow-up questions has really made a difference.
Keep me posted about your April 9th scan, hoping for better news!!