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Profile picture for beachflyer @beachflyer

I was diagnosed 2 years ago with Gleason 3/4 (5%), T2, Second opinion by a different hospital downgraded to 3/3 (T1). Active Surveillance (AS) was not a great option due my "MRI invisible" lesion that would mean frequent biopsies to supplement MRI data and I had hematospermia (blood in semen) as well along with family history of cancer. (The blood thing is a great motivator for treatment). Pathology after "nerve sparing" surgery was upgraded to T2 Gleason 3/4 (30%). No incontinence, but ED is still there at 17 months.

I would recommend going slow on your treatment decision. I recently attended the Moores Cancer center PC Summit. They gave a very good presentation on AS that shows no increase in mortality or negative outcome by choosing AS and then later choosing a definitive treatment. The one caveat to this statement is that you must stick to your AS protocols with routine PSA monitoring, MRIs, and biopsies.

Best of luck moving forward!

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Replies to "I was diagnosed 2 years ago with Gleason 3/4 (5%), T2, Second opinion by a different..."

@beachflyer thank you for your story and experience. I have watched and read a lot about AS that concurs with what you stated. I believe the science and data of AS I’m just not sure it is for me, or better yet it doesn’t agree with my mental wiring. I’m giving it time and will be coming up on a year of AS this summer. Not to get to personal and answer if you want to but in terms of ED are you experiencing no movement or you just need help via meds?