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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@absentsenior Good Afternoon
I'm so happy to come home from my holidays to the news that your RNS surgery went well! 😊 Fingers crossed for great results with your newly implanted RNS! 🤞
@caseybach, @lsittll, and @pmracc33186 — would you mind sharing how you felt in the days and weeks right after your RNS implant? Your firsthand experiences would mean a lot here. Thank you so much for participating!
Chris

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Replies to "@absentsenior Good Afternoon I'm so happy to come home from my holidays to the news that..."

@santosha Strangely enough, my body felt fine and for obvious reasons I had a headache. Not severe. Internaly, I could hear a squishy sound that was very strange. It took me a while to realize it was air that eventually went away. I had a friend stay with me for safety and asked her to pay particular attention to my balance and speech. She never noticed anything out of the ordinary. The hard part was forcing myself to stay down because my body felt fine. I intentionally slowed down mentally. It was frustrating because I couldn't concentrate or focus on more than one thing at a time. I learned to think of my brain as a muscle. When I felt confused or mentally frustrated, I forced myself to stop what I was doing and shut down for a while. That means resting or doing mindless tasks. I'm back at work now with a job that requires a lot of organizing and keeping multiple balls in the air at one time. I take a lot of breaks and use FMLA. Full cognitive and mental function recovery from this surgery can take 6 months. Be patient and FORCE yourself to stop when you feel tired or overwhelmed. Keep a note pad with you at all times. It will keep you sane if you let it be your "remind me" friend. I am very anxious to see the upload results this Friday when the 1st programming is done.