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Is anyone suffering with Anti MAG neuropathy?

Autoimmune Diseases | Last Active: 2 days ago | Replies (34)

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Profile picture for positivehealth @positivehealth

@laporta
Hello
What are your symptoms?
Do you have difficulty walking and is it progressing?
Have you had any treatment?
Thank you for sharing!

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Replies to "@laporta Hello What are your symptoms? Do you have difficulty walking and is it progressing? Have..."

@positivehealth I have numbness and pain in my feet and fingers, but I also have issues with leg and arm pain. I am getting IVIG every 3 months, and my neurologist has just increased my Lyrica 50 to 3 times a day. These are helping but I am concerned about progression, how long I have had this, does anti MAG affect internal organs? I had surgical removal of a lung cancer tumor that did not need further treatment other than frequent ct scans. She has referred me to hematologist who I see next week. I feel overwhelmed and worried about future debilitation. Thanks for responding