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@cjhmayo3

Have you seen a motion disorder neurologist? I have white matter diease, but also Dystonia, the genetic version so it's a neurodegenerative brain disease. I get quarterly Botox and take NSAIDS and strong muscle relaxers.

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Replies to "Have you seen a motion disorder neurologist? I have white matter diease, but also Dystonia, the..."

Hello @cjhmayo3, Welcome to Mayo Clinic Connect. Thank you posting and sharing your diagnosis and treatment. There is also another discussion on Connect that you may be interested in reading through and learning what others have shared about their experience with Dystonia.

Anyone dealing with Dystonia?: https://connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia/

May I ask which symptom causes you the most problems?