Hello again @stephenluptak,

One more thought for you in seeking the best treatment available for you. Are you aware that Mayo Clinic has affiliated hospitals throughout the country?
Here is a link to an article about this, https://www.mayoclinic.org/documents/cautiously-mayo-builds-an-empire/doc-20139626.

As you can see, from this article, the affiliated hospitals have direct contact with Mayo doctors for consultations. It might be a good option for you to consider in order to get the Mayo expertise, but just closer to home.

If you are interested in finding out more about a Mayo affiliated hospital in your state, you might consider giving one of the Mayo facilities a call and finding out where the closest affiliated hospital is to you.