Good morning, @stephenluptak

I just read your latest post and I see that you don't feel you can afford a trip to Mayo right now, and that is understandable. (Please remember that they have 3 facilities in Minnesota, Arizona and Florida)

In lieu of making a Mayo trip, look for a teaching medical center in your area (I live near Univ. of Michigan) which qualifies as a teaching/research hospital.

Another option would be to connect with an organization that supports people with brain disorders, they will often have a list of specialists in a particular disorder and will list their names and addresses from all over the world. I have a rare type of cancer, Neuroendocrine Tumors, and the national NET organization has a list of all of the researchers/specialists throughout the world. Through Mayo Connect, I have been able to help people find specialists, even in Sweden.

If you need some more help finding the best doctor to treat you, will you let us know?