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Brain injury white matter, encephalopathy, and encephalitis

Brain & Nervous System | Last Active: Jul 20, 2021 | Replies (70)
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@stephenluptak

Thank you for the links!

I have been in the business end of healthcare for most of my life. And I've had some of the worst care at the facilities where I worked, especially from physicians that I represented against health insurance companies.

I have not been able to work much in the 21st century. As such, I can't afford trips to any of the Mayo facilities. So I am pretty much on my own.

Please take care!

Steve

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Replies to "Thank you for the links! I have been in the business end of healthcare for most..."
John, Volunteer Mentor | @johnbishop | Oct 25, 2018

Hi Steve @stephenluptak, Another tool I use for researching health issues, new treatments, and clinical trials is Google Scholar. It's useful because you can sort the links it finds by year and get the most current information at the top.

-- https://scholar.google.com/

Can you let us know if you are able to find something that helps you?

Hoping you find some answers soon.

John

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Teresa, Volunteer Mentor | @hopeful33250 | Oct 25, 2018

Good morning, @stephenluptak

I just read your latest post and I see that you don't feel you can afford a trip to Mayo right now, and that is understandable. (Please remember that they have 3 facilities in Minnesota, Arizona and Florida)

In lieu of making a Mayo trip, look for a teaching medical center in your area (I live near Univ. of Michigan) which qualifies as a teaching/research hospital.

Another option would be to connect with an organization that supports people with brain disorders, they will often have a list of specialists in a particular disorder and will list their names and addresses from all over the world. I have a rare type of cancer, Neuroendocrine Tumors, and the national NET organization has a list of all of the researchers/specialists throughout the world. Through Mayo Connect, I have been able to help people find specialists, even in Sweden.

If you need some more help finding the best doctor to treat you, will you let us know?

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