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DiscussionBrain injury white matter, encephalopathy, and encephalitis
Brain & Nervous System | Last Active: Jul 20, 2021 | Replies (70)Comment receiving replies
Replies to "Thank you for leads. I will follow-up. My KC neurologist diagnosed me with Alzheimer's, but the..."
Hello @stephenluptak
Many of us who post on Connect have had similar stories of being misdiagnosed or misunderstood by doctors and we can understand how frustrating it is. I know that you must feel frustrated because of all of the conflicting diagnoses you have received. I can only add to what has already been said that a second opinion would be your best option right now.
You definitely need to talk to a medical center (like Mayo) who can sort through all of your tests, medical records and talk with you to help you find an answer. Does this sound like a good idea to you as well?
How do I contact @techi, @jeancary, @nancywootten @kajunangel67 and @jc2buds? Thank you.