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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: 17 hours ago | Replies (3214)Comment receiving replies
Hello,
am 60 (male) and have had 20yrs of combined gradually worsening RLS and SFN. Have done various tests to fairly certainly confirm these diagnoses. Been on pretty much all medications, done acupuncture, Chinese medicine TENS (and other electrical treatments) etc. and currently taking Methadone 5mg (at dinner time). The Methadone helps with the RLS but I still have gradually worsening burning feet for at least 2hrs each night (mostly between 12am - 2am).
Needless to say, poor sleep is challenging and poor prognosis with no known effective treatment is discouraging. I work with a neurologist and intermittently with other practitioners (acupuncture, naturopath, functional medicine) whom I trust - but they have no effective treatments to offer so far. Does anyone here have additional information? Thank you!
Replies to "Hello, am 60 (male) and have had 20yrs of combined gradually worsening RLS and SFN. Have..."
Welcome @bododa, Thanks for sharing the different treatments and challenges you have with restless leg syndrome and small fiber neuropathy. Poor sleep is a challenge indeed. I have small fiber peripheral neuropathy and also have obstructive sleep apnea. A CPAP device helps me but it also provides some challenges of it's own finding the right mask that works for me.
Have you ever had an overnight sleep study?
I have been suffering from Peripheral Neuropathy for about 8 years now. I even have a spinal cord stimulator in and still no relief.
I am sorry you suffer from neuropathy also. I have had no help from my doctors and no medication that helps me at all. I just lay in bed until I fall asleep with my tv on very quietly.
Hope for the best for you,
Very frustrating.
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@bododa
I know what you’re going through. I am a 60 year old woman and I am scared. My symptoms came on suddenly. At home I kept falling all over the house because my legs and feet wouldn’t work. I couldn’t drive anywhere without the fear of falling or getting into an accident. I went to the gas station to fill a low tire. When the tire was full I capped the tire. I went to put the air hose back. I took a step back and I fell on my back and hit my head really hard. So I had my friend come get me and she took me to the emergency room, They ran bloodwork and lots of scans. They said they found nothing. And the bump on my scalp was as big as a baseball. As the days passed they transferred me to a nursing home. Now I’m freaking out. Why are doctors so clueless. I found a wealth of information on the internet. That’s how I ended up here. Feels like I’m on fire and someone is sticking pins and needles in my feet, lower legs, Wrists and hands. I wish someone would help me already!