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Chemoradiation Alone?

Esophageal Cancer | Last Active: 1 day ago | Replies (18)

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Profile picture for lionsfan @lionsfan

You don't mention why your Mom doesn't want tube feeding, but it is understandable given the nature of it. I was on tube feeding for 30 days prior to eating soft foods and then a relatively normal diet. The challenge of course is her weight loss and strength loss, particularly while on treatment and fighting this disease. If she does choose surgery, there most likely would be a 45 day window to heal and gain strength prior to the surgery. Possibly, there's something different in your Mum's case. She's a young woman yet and needs her strength to fight this battle. I'm hoping she'll change her mind and go on tube feeding. BTW, I'm 67 years young and had chemo radiation and the tumor did go away. However, I felt that surgery was the best option for long term recovery. I also had adenocarcinoma, not Squamous cell. Best to you both with your treatment.

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Replies to "You don't mention why your Mom doesn't want tube feeding, but it is understandable given the..."

@lionsfan

I think she doesn't want tube feeding because of fear of the unknown, luckily she's been able to keep down liquids throughout and I do my best to make a plan for her nutrition and try to give her lots of protein, it was however challenging the last weeks of treatment. She is getting better since last week but still afraid of even trying solids or even soft foods, did you have this fear during transition?

It is already 55 days since her treatment , and she is scheduled to have her first scan this week. Hopefully she will able to make up her mind after the results once she knows the outcome of the treatment.

I'm happy for you that even after the chemo radiation worked, you were able to quickly decide that surgery was the best option.

I wish she had that sort of clarity. I imagine its just not an easy journey all together.

I will continue to do my research. I have read some trial outcomes on salvage surgery etc.

I don't know if this is relevant. But she was told she has stage 3, and spread to one lymph node. No further metastasis.

Thank you so much