Gabapentin temporary increase?
I am wondering if anyone in the group has had any luck with temporarily increasing doses of Gabapentin for nerve pain flare ups? I have been doing fairly well with 1300mg/day (divided 3x/day). Then about a week ago, the pain started coming back. I have been managing it with Advil.. but dont want to keep taking that for obvious reasons. One of my doctors (not a Mayo doc) has told me to increase "as needed" then return back to baseline dosage. My Mayo doc has told me that Gabapentin is not used in that manner.. I have been reading posts on this site that suggest taking increased dosages for flare ups is effective. (I'm a little confused). Can anyone share any experience with treating nerve pain flare ups? Thanks!
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I agree with @jakedduck1 about how Gabapentin is not intended to be on an as needed basis. I have been on it for almost 10 years, and it took about 1 year for us to find out 800mg 3x a day was my successful dosage to keep my idiopathic neuropathy pain at bay. However, my doctor told me if I ever have a rough day and felt some unusual discomfort, that it would be OK to take an extra pill but just for that day… he didn’t suggest that I regularly change dosages up and down. I’m glad I’ve only taken an extra pill about 5 times over 10 years, which probably suggests my dosage is just right for me. The times I took an extra one was on days when I definitely had increased physical activity or over exertion where I felt it “wore off” faster than usual or my body just required a little extra help. I hope you find your right dosage.
@shbara88 My PM doc doesn't tell me much of anything. Despite my requests he just refills and adjusts my pain pump. Have a blessed day.
@dbeshears1 thanks.. so then you DO take an extra pill of gabapentin when you are having a rougher/more painful day.. ??? and that works?? (this was my question ).....
@stevenlo Yes, for me it has worked on those rare occasions that I have needed a boost. As you can see, compared to a lot of folks, I’m already on a high dose so I wouldn’t want to go up in total if I don’t need to. If I maintain my regular dosage, I feel I don’t even think about my Neuropathy pain. But on occasion, when I’ve missed a dose, i might start feeling a little pain and my body reminds me that it’s time. I try not to let that happen, because it may take a few cycles to get me even keel again. I never take 2 at the same time, even if I’ve missed a dose. The times I have reached for that 1 extra pill between normal doses have been days I’ve had an unusual amount of extra steps or standing.
@dbeshears1 Ok. this is what I wanted to know. I had a flare up last week and remembered that my Neurologist said "take an extra pill if you need it".. intending to augment the normal dose on a temporary basis.. Then I was told by my PM doc that does nothing because gabapentin is not that sort of med.. (can't take it for temporary pain, like you'd take Advil etc.. ). I have a friend that DOES take a few extra pills when she has a flare up, then goes back to her normal dosage. I was confused as to if it would even be effective for a short term flare up. Based on what you do, it seems to work for temporary pain flare ups?
@stevenlo Yes, exactly, that’s what my Neurologist advised me to do.
@dbeshears1 Thank you.. although my dosage is pretty much where it needs to be, I am still new to the nerve pain "rollercoaster" .. and want to be able to manage it as effectively as possible when flare ups happen... I thank you for your input!
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1 Reaction@shbara88
Is the Dopeamax as it's widely known in the epilepsy world helping?
Jake
@jakedduck1 I got a kick out of that one. I had not heard of gabapentin referred to as Dopeamax! Gababentin (which I refer to as my Gee drug) does make me slightly fogger than I would be other wise, but makes up for it by making me more off balance on my feet!
I have taken as much as 2400 mg a day in four doses. I'm now on 1500mg per day - trying to decrease that to 1200 mg per day very recently. It is effective in decreasing my mild diabetic neuropathy. Due to the information found on this forum, I now also take R Alpha Lipoic Acid and vitamin B12 (methylcobalamin ) . I believe these have helped in my being able to reduce gabapentin dosage.
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1 Reaction@cleveland26 How long do you wait after you reduce to determine if the pain is returning (and you should increase again??)