← Return to Ulcerative Colitis total Colectomy with Ileal J pouch

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Profile picture for fckaiser @fckaiser

Sorry to hear about your discomfort with the J-pouch. I had a ileostomy 8 years ago and at that time decided to go with a stoma and external bag. It concerned me about pouchitis complications and abdominal discomfort. My gastro doctor said I had a 30 per cent chance of not feeling as good as I did after surgery if I decided on the J-pouch option. I was tired of dealing with abdominal pain so I opted for the bag. It has been 8 years now living with a stoma and external bag and I am very glad I did. I work out 3 times a week at the gym, play golf, eat what I want and am enjoying life again w/o abdominal pain. I don't relish the idea of the bag but it is much better than the other option. For some people it works OK but the small intestine was never meant to be a colon. Best Regards, God Bless

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Replies to "Sorry to hear about your discomfort with the J-pouch. I had a ileostomy 8 years ago..."

@fckaiser Thanks for that. When I had the initial surgery I of course had the bag temporarily for 3 months before they did the reverse procedure to hook up my jpouch and during that 3 month period I had huge problems with the stomach/bad and couldn’t wait to get the jpouch connected. So I am terrified of the idea of reversing the jpouch. If mine fails I will not be able to survive anymore. And I’m ok about that seeing that I am 71 years old and have lived a great life and lucky that I could do so. My wife understands this also.