@philipsnowdon
You say that “ TESTOSTERONE can’t feed cancer cells that are not there.”. The problem with that statement is that there is no test that can show whether or not you have cancer cells left. A PSMA Pet test cannot find metastasis smaller than 2 1/2 mm and a UCSF radiologist said even 5 mm is hard to see.
Many prostate cancer patients have micro metastasis. Those can be fed and grow with testosterone. I know so many people that have gone on vacations from the drugs and had the cancer come back within six months, a year, two years, or five years, It varies a lot in other words.
I’ve had close to zero testosterone for eight years. It just doesn’t cause fatigue for me, And I suspect there are a lot of other people that have the same situation. Some people just can’t take it when they have low testosterone and are in a situation like you are.
It’s just not that simple to Start including testosterone in the mix for somebody that’s had prostate cancer.
You also say “I’ve never heard of any man functioning well in his overall life, wellbeing and energy levels on “ADT.””
As I mentioned above, I’ve been on ADT for eight years. My testosterone is below five. You would have no idea. I’m on it if you spend time with me.. I don’t have fatigue. A jog on a track a mile twice a day every day (had to stop running when my orthopedist said it would shorten the life of my replaced hip). I go to the gym three days a week and exercise with weights, then come home and jog the track. I do have to take bone strengtheners which I’ve done for seven years, Not a big deal. I’ve had prostate cancer for 16 years and had been undetectable for the last 28 months. Had surgery three years later it came back so I had radiation. Been on multiple drugs since. I’m 78 And people i’ve run into think I’m 10 years younger. My wife and I go dancing almost every Saturday night. We swing dance and do it For around 2 hours.
Hopefully, you can continue doing things the way you are and not having a reoccurrence.
@jeffmarc
"....there is no test that can show whether or not you have cancer cells left."
This is very nearly precisely what my radiolgist (Weil Cornell/MSK/HHC Tallwood - trained) advised me last week. I had asked: '...what's left of the cancer' and he carefully explained what Jeff notes.
Separately, I am 27 days since my last orgovyx pill and 12 weeks post SBRT. Orgovyx was easily tolerated (some fatigue, some arousal decline - but not entirely) and no one would know anything was going on. I did have some voice/vocal hoarseness that is persistent yet. ADT, from every source and conversation I have had, is absolutely a key part of treatment for the vast majority of patients.
Go Easy fellas...