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@mary1016 What state do you live in? What your doctor is doing is referred to as EXTORTION. I would be making a formal complaint to the state medical board. They are literally withholding medical treatment to line their pockets. I live in WI, and if one of my doctors did or thought about doing that, there would be hell to pay. I am 63 years old and have been on my meds for almost 10 years. You need someone to help you with this issue. Do you have an ADRC where you live? I have learned through the years that if we do not advocate for ourselves, sometimes nothing happens. I just went through an insurance change in January. Played havoc with my ADHD meds, my Insulin Pump. I had to literally start calling every day about prior auths that were supposed to be done. Long story short, I made a formal complaint to the patient Experience team for my clinic and the prior auth I needed was submitted on Monday and approved on Wednesday. Sometimes we have to take the bull by the horns. And I am on SSDI as well.
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@kalanisdad Thank you for your reply. I live in New York and my doctor Suelane DoOuro is in NYC. So far I've only contacted my insurance to tell them what she did. I don't know what an ADRC is. I'm sorry, I had a procedure where they burnt my brain and it makes life extremely difficult. I want to report her to the NY state board but the require written proof of all she's done to me and I don't really have any. She keeps diagnosing herself with the same rare diseases I have. First for a year she claimed to have Complex Regional Pain Syndrome which turned out to be one patch of Neuropathy. I knew she didn't have it because I'm a diagnosed Empath and can feel other people's pain. She also claimed to be an expert in that disease but doesn't know a thing about it. Now she's saying she has Small Fiber Peripheral Neuropathy. Again, I feel nothing when she comes right up to me to fill my pump. If she really had it she wouldn't be able to come near me because it would make me scream in pain. In fact a friend's brother came with her to my house once and when he came near me I did start screaming. I told him to make an emergency appointment for a punch biopsy and I guaranteed him it would come back with Small Fiber Peripheral Neuropathy. They had been trying to figure out what was wrong with him for 3 years. Thank God they listened to him and sure enough thats exactly what he had. That's how I know she's lying again. She didn't even go for the punch biopsy which is really the only way to confirm you have that rare disease. I think she's mentally ill and she definitely not be treating anybody.