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Share Your Brain Tumor type & Years since Diagnosis

Posted by jstow07 @jstow07, Aug 8, 2018

Hey everyone I was diagnosed almost 7 years ago with a medulloblastoma in my right cerebellum. Completely removed followed by proton radiation. No reoccurrence since. Just curious what everyone else has and how many years and treatment

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rollo8 | @rollo8 | Mar 11 9:06pm

This gives me some hope. My husband is 77. Diagnosed in January, this year, with stage 4 glioblastoma. Had surgery and starts radiation and TMZ tomorrow. He mall walks, but feeling more tired. Can do the stairs and showers without help. Speech a bit slurred and some short term memory loss. Great appetite. Has virtually no medical history other than borderline high blood pressure and slightly elevated cholesterol. He was told 12-18 months. Looking forward to milder weather so we can walk outside more.
Yes. One day at a time. Praying for you and your husband.

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Colleen Young, Connect Director | @colleenyoung | 4 days ago
In reply to @leg1945 "My husband was diagnosed with glioblastoma stage 4 wild rose in November 2024. At that time..." + (show)
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My husband was diagnosed with glioblastoma stage 4 wild rose in November 2024. At that time he was given 6-9 no the to live. Resection of the tumor left a small nodule with too many blood vessels to remove. MGMT was minimal. Radiation and Temodar started in January 2025. After radiation and initial dosage of Temodar has been doing 28 day cycles 21 days on and 7 days off. Tolerates it well. Had gamma knife on remaining nodule in July 2025. MRI in November had no tumor growth. MRI on March 10 small enhanced area probably from radiation. He is doing well just needs to be more active. Some speech aphasia and short term memory loss. He turned 77 in January. We take it a day at a time and are waiting for warmer weather so we can get out more.

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@leg1945, such an encouraging story to hear. No tumor growth sounds good. Does your husband like to walk outside if the weather is warmer?

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leg1945 | @leg1945 | 4 days ago

MRI from March 10 showed a small are that wasn't there in November. After review by tumor board it is felt to be recurrence. We were told it couldn't be in a better place for Gamma Knife. Will have procedure within next couple of weeks. We continue a day at a time.

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