PS: About 6 years ago in Oregon son's partial/focal seizures began. Unbeknownst to us, the OR. neurologist he'd been seeing for 3 years, was all about classical seizures-- Grand Mal aka 'tonic clonic' ----yes partial/focal ones happened, he allowed, but never addressed them. ------------------ Anyway, --I knew nothing about PNES--but in what became our LAST appt with the Oregon neurologist, he decided that PNES was also my son's "problem" --and then with a wave of his hand, (like shooing away flies) he said: " get a therapist". We never went back. -The next month, at my urging, son moved to Calif.-- Here we have a highly trained neurologist, who gives focal/partial seizures respect. ----AND, now it seems that PNES is popping up too ...
While CA neurologist isn't certain son is also having PNES episodes (apart from tonic-clonic & partial seizures) in a few weeks he'll be outfitted with at-home 24 hr EEG mobile test (wires all over his head) This "may" help neurologist/us to understand what's happening ---- PNES doesn't always show up on EEG/ and that's ok. Main thing: son's CA doctor isn't going to shoo us away.