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Collagenous Gastritis

Digestive Health | Last Active: 1 day ago | Replies (560)

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Profile picture for ebrousseau @ebrousseau

@kanaazpereira I have both collagenous colitis and severe collagenous gastritis. Last year I was installed a feeding gastrojejunostomy because I became too weak and was unable to eat more and adequately compensate for the severe malabsorption those caused me. My stomach is compromised, collagen is growing, the stomach small, hardened and non-compliant.
My life is forever changed, I am very thin, and I live thanks to artificial predigested food (1/3 of my daily food intakes). No treatment has worked, trying new ones, last biopsies show progression.
Do we know of any severe cases like mine? I live in Canada, but willing to fly anywhere someone wants to study my case.

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Replies to "@kanaazpereira I have both collagenous colitis and severe collagenous gastritis. Last year I was installed a..."

@ebrousseau Hi, We live in CT. I would be interested in hearing more about your journey with CG. My daughter was diagnosed this year and it seems to be progressing quickly.