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HPP and what to take for bad dexa density

Osteoporosis & Bone Health | Last Active: Mar 22 11:42am | Replies (6)
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Profile picture for oopsiedaisy @oopsiedaisy

Apologies if you posted elsewhere but why do you suspect you might have hypophosphatasia?

Here is a case of a 36 year woman with HPP who had normal ALP levels (alkaline phosphatase). She did have other symptoms of HPP so in this case they couldn’t rely on her ALP levels to confirm the diagnosis but had to confirm it with genetic testing. It does appear to be rare that someone with HPP has normal ALP levels but it appears it can happen.

I also found references to using Evenity asa possible treatment; https://pmc.ncbi.nlm.nih.gov/articles/PMC9646966/

I hope your doctor is planning to perform genetic testing to confirm whether you have HPP.

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Replies to "Apologies if you posted elsewhere but why do you suspect you might have hypophosphatasia? Here is..."
2024tymloshelp | @2024tymloshelp | Mar 22 11:42am

@oopsiedaisy

I have inflammatory joint pains ( I am 65 years) , my knees have always cracked loudly , I am petite,
And someone in my family in their early 60’s is starting to lose their teeth oddly. ( I know these things are random ) but I figured I’d ask my doctor if I have the hpp gene before I agree to take a bisphosphonate

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