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DiscussionParotid gland tumor. Will need surgery. Your experience at Mayo?
Head & Neck Cancer | Last Active: 18 hours ago | Replies (30)Comment receiving replies
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@trainwife I can understand your distress. Appearance is a big part of who we are and these paralysis changes are tough to live with. I am currently having more facial issues which I feel to be more muscle atrophy and fibrosis from radiation. Facial exercises seem to help, as does infrared light therapy. I was just referred to a Dr. Dey at Mayo Rochester who specializes in facial reanimation and see him in June. I am not sure that is what I need but my new ENT had no suggestions. If nerve damage is part of your paralysis as mine was, give it time. Nerve tissue is very slow to heal and regenerate function. I was still improving many years later. Research Lion's Mane mushrooms for a nerve supplement. When I started taking that from RealMushrooms.com I had a definite improvement in nerve control. Tho it is hard to look in the mirror some days, your family and friends do not judge you for your appearance. It can be the new normal. Keep up your exercises and look into red light therapy. Enjoy spending time in nature as it relieves some stress. This can still improve for you, just keep looking for new options.