← Return to Parotid gland tumor. Will need surgery. Your experience at Mayo?

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Profile picture for Catherine @trainwife

It has been over 2 years since we last messaged. I hope you are doing well. I had a setback on June 2, 2025. My scan of May 27, 2025, showed a malignant nodule on the tip of my lung (the same cancer). I had a lung resection on July 1, 2025, at Mayo. Since then, I have had a few more surgeries on my face, focusing on the lips and smile. I am losing hope, I will never smile again. I go to speech therapy and do daily facial exercises, and still talk out of one side of my mouth. The top right of my lip does not move. My quality of life is not good. I am lucky that my husband has stood by my side, although marriage is difficult. I see a counselor every other week, but I am still my own worst enemy. When I hear of stories like yours, 12 years is a long time. No one ever told me before my surgery that I would never smile again. I miss my old self.

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Replies to "It has been over 2 years since we last messaged. I hope you are doing well...."

@trainwife I can understand your distress. Appearance is a big part of who we are and these paralysis changes are tough to live with. I am currently having more facial issues which I feel to be more muscle atrophy and fibrosis from radiation. Facial exercises seem to help, as does infrared light therapy. I was just referred to a Dr. Dey at Mayo Rochester who specializes in facial reanimation and see him in June. I am not sure that is what I need but my new ENT had no suggestions. If nerve damage is part of your paralysis as mine was, give it time. Nerve tissue is very slow to heal and regenerate function. I was still improving many years later. Research Lion's Mane mushrooms for a nerve supplement. When I started taking that from RealMushrooms.com I had a definite improvement in nerve control. Tho it is hard to look in the mirror some days, your family and friends do not judge you for your appearance. It can be the new normal. Keep up your exercises and look into red light therapy. Enjoy spending time in nature as it relieves some stress. This can still improve for you, just keep looking for new options.