← Return to Convulsive pre-syncope
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Replies to "@jenniferhunter I landed on this note you wrote to sb4ca because I am looking for answers..."
@fpc3 First, I have to thank you for your service. A few of my uncles served in WWII. A friend of mine had an event similar to yours where he passed out and was incoherent and belligerent and was taken to the ER and hospitalized for a few days. He had a sudden loss of blood supply to the brain that was not a seizure, but doctors were unable to determine why. He recovered and was sent home.
In my own experience, if my neck is tight, and I bend it forward, I could have an increase in heart rate. I also have thoracic outlet syndrome that increases tightness of my neck and shoulder and is related to tight fascia and scar tissue. With TOS, there is compression of nerves and vessels, and it causes diminished pulse rate when turning my head. That is one of the diagnostic tests for it. Nerves for heart rate and breathing will travel through some neck areas that could be tight. I also have asthma and allergies that cause phlegm, and tightness due to TOS limits the chest wall movement on the left, so my lungs don't move as well causing phlegm to accumulate. When too much of that happens, it can easily turn into a lung infection. All of that can affect my heart rate and my resting heart rate goes up with excess phlegm, and I can feel it with some discomfort on the left side of my chest. I start doing some physical therapy called myofascial release to loosen the chest muscles. Basically, I push with my hand or a tool of chest muscles to create a shearing force against the barrier of tightness in the muscle. I just hold until it starts to release, and I start feeling the phlegm start to clear.
The issues that I have had that started sudden dizziness and vertigo where when my C1 & C2 were rotated spontaneously due to muscle spasms. The vertebral arteries run inside the cervical vertebrae, and that stretched them, altering some of the blood flow to the brain. That was corrected by realigning the vertebrae properly which relieved the dizziness. That has not happened since my C5/C6 fusion 10 years ago. You need stability at the C1 skull level. That is also related to jaw alignment. I am currently working on that with a specialist and my C1 is staying put where it belongs.
I think there could be a lot of conditions that could have similar symptoms to your experience and doctors need to figure out what is triggering your events. That has to be a lot on your plate. I am glad that you seem to be proactive in facing this and looking for answers. I don't know what could be triggering your episode and don't have the expertise to diagnose anything, but I can share my knowledge related to my experience. Some doctors know about MFR and embrace it and some do not. PT helps me a lot.
If you wanted to explore myofascial release therapy, here is a discussion where you can learn more. I have done a lot of this, and it helps and helps my breathing improve when I'm struggling. Your lungs are nearly all fascia that connect to the fascial network outside of the lungs. MFR can get tissue moving again and let fluids circulate again. Tissue can get stuck and dehydrated. This is just physical therapy. There is a provider search at https://mfrtherapists.com/ . MFR can help loosen surgical scar tissue. I also use MFR on scar tissue related to my previous ankle fracture. It tends to tighten up periodically and to stop my ankle from weakening and collapsing, I need to loosen the scar tissue, so the joint isn't compressed together. All surgery creates scar tissue, and it tends to get tight. It may be worth working on that.
Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
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@fpc3
That must have been very scary. And scary not knowing the cause. This is the original poster. I just wanted to comment that I never had memory loss for any significant amount of time. I was aware that my vision was becoming tunneled, I did have hearing loss and had hurt myself from not being able to stand. But I remember that I couldn’t stand up despite trying and my arms clearly were moving or jerking on their own. But all this passes in minutes. I believe that is a key sign of OH vs something different. I started getting these spells before my surgery. My surgeon knew I had OH because I listed it on my medical history. And my BP tends to run really low anyway. I honestly think my symptoms are pretty classic for this form but the fact you lost time/memory sounds different. Or it triggered something else that’s unknown right now. I hope you find answers. That honestly sounds so scary. So sorry