Your situation sounds much like mine! Pain has never been the issue!! It's kinda like if pain isn't the problem then you have no problem! I was able to research and diagnose myself, but then I had to find someone familiar with my condition! I contacted Mayo in Jax but they had no openings in the foreseeable future.

I can't stand straight, or walk far because of the effort it takes to stand up enough to move forward. I now have to take a rollator with me everywhere. I can't plan a vacation that would in involve any walking!

I have "sagittal imbalance", or "bent spine syndrome". I found a surgeon at USA (Dr Richard Menger), who was able to diagnose me with a standing X-ray. MRI doesn't show the problem. I have a very high pelvic incidence which predisposes me to this and more, issues. Look it up if they didn't tell you the name.

I am scheduled for ALIF June 30 and T12 to Pelvis fusion July 1. I opted for the "big bang" approach because I want to be fixed... And I'm not getting any younger, lol! I'm sure I can't imagine the pain I'll be in for awhile but I know I'll get through it and am so excited at the prospect of just taking a walk!!

Good luck on the remainder of your recovery and I hope this helps just to know you're not alone.