← Return to Post-Transplant Care: What to Expect

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Profile picture for woodstock1959 @woodstock1959

@pgruetz thank you. Day 8 he’s still very confused doesn’t recognize pics of family or me. He says my name later in the day and talking but not making sense. He didn’t have a stroke or seizure. Were you like this

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@woodstock1959
Absolutely I was a mess and didn’t know were I was and my thoughts were very bizarre even when I first got out of the hospital I suffered major depression and had suicidal thoughts I was not in a good place and wished I never went threw it all my brain bleed stroke and seizure definitely contributed to it, I was put on Keppra for over 2 years and saw a neurologist. They did a EEG and other tests on me . My one complaint was there wasn’t anyone that I could talk to my hospital advocate was worthless and truthfully shouldn’t have a job there (not Mayo ) I didn’t know about this site for a year but it would have helped, I’ve only met one person in my life that had a liver transplant . Give it time in a period of 2 1/2 years I was put under over25 hours of surgeries. Keep in mind I was an extreme case and near death (within a couple of days) everything is great now I’m very happy swimming a mile almost everyday but stay in a very small circle of friends and never go in any crowded places ever because of my low immunity and eat extremely healthy no fast food etc . I was a test case for my hospital for over a year for students that attended the college. Give your husband time I was totally out of it for quite awhile and down to only 3 different meds when previously I started on 26 different ones. I believe that was part of it having so many different drugs. I took an IQ test and am above average so I know my brain isn’t shot . I wish your husband well it’s a long recovery road plus during all of this I had to learn how to walk twice and used a walker for months.