What happens during radiation for esophageal cancer?

Posted by cottonsunflower @cottonsunflower, Mar 9 2:00pm

My husband has stage 3 esophageal cancer diagnosed December of 2023. He began chemo in January of 2024 getting that treatment every other week for over 2 years now. Well now the cancer is slowing growing and affecting his swallowing. Food is getting stuck causing him to throw it back up. The doctor has decided to do radiation for the first time. I was wondering about what happens during radiation. Will his throat swell? I heard it would and there would be scaring. The doctor has mentioned this as well but I am a little worried about it closing up all the way! He said he would have to be on liquids eventually. I see a lot of your stories are chemo and radiation together and I was just wanting to hear about it first hand from someone going through it. Thank you for any insight you can give. he starts on March 23rd.

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Profile picture for cottonsunflower @cottonsunflower

Saw the radiation doctor yesterday. My husband will get 27 radiation treatments beginning on the 23rd. I know it will get worse before it gets better, but I am hoping for a good outcome after it all.

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@cottonsunflower, thinking of you as you and your husband prepare for radiation starting on Monday. What foods have you stocked up with in the pantry? How are you feeling?

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Hi from Tasmania, I had radio and chemotherapy together (finishing in April 2024) so may not be able to answer your question specifically. What I did want to say though is
- there are 2 types of radiation beam, photon and proton beam. The latter is said to be more precise in focus and to have fewer side effects as I understand it. I had photon beam radiation. Worth knowing which you’re about to have.
- the side effects are very personal and variable and are cumulative. I was warned of a possible list of horrors including a severe sore throat. My course was 24 treatments, the first 20 or so causing no problems at all. The last 4 were pretty trying - very severe fatigue which is almost guaranteed and mood swings that I understand are not so common.
You can speak with hundreds of people with first hand experience of radiation therapy and still have no idea how your husband will react / tolerate treatment.
There is a good chance the treatment will shrink the cancer allowing your husband to eat normally, so it’s worth accepting within reason any side effects the treatment causes. This is a difficult time for you both so I’ll end by wishing you all the best. Geoff

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Profile picture for geoff123 @geoff123

Hi from Tasmania, I had radio and chemotherapy together (finishing in April 2024) so may not be able to answer your question specifically. What I did want to say though is
- there are 2 types of radiation beam, photon and proton beam. The latter is said to be more precise in focus and to have fewer side effects as I understand it. I had photon beam radiation. Worth knowing which you’re about to have.
- the side effects are very personal and variable and are cumulative. I was warned of a possible list of horrors including a severe sore throat. My course was 24 treatments, the first 20 or so causing no problems at all. The last 4 were pretty trying - very severe fatigue which is almost guaranteed and mood swings that I understand are not so common.
You can speak with hundreds of people with first hand experience of radiation therapy and still have no idea how your husband will react / tolerate treatment.
There is a good chance the treatment will shrink the cancer allowing your husband to eat normally, so it’s worth accepting within reason any side effects the treatment causes. This is a difficult time for you both so I’ll end by wishing you all the best. Geoff

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@geoff123 I've posted in the thread before, but I just noticed something in yours which needs comment. You don't automatically get shrinkage and easier eating. In my case, the cancer was essentially erased, according to the last EUS and biopsies. However, I ended up with a great deal of scar tissue in its place. I had about the same amount of dysphagia as before. I existed for six months or so on gastric peg tube feedings. I've now had three dilations. Before the last one, I'd shrunk back down to 8mm lumen. The GE was able to stretch it out to 13mm (about 1/2" SAE). I can tell its shrunk again. I have another dilation scheduled for nine days from now and a PET/CT for this Monday. In the third week of April, I go back to Houston for another EUS and biopsies, and, if necessary, another dilation. Scar tissue doesn't like to be stretched. An oncologist friend of mine (not my doc) told me his record was a patient who'd had 40. I'd add there are other procedures which can be tried before matters reach that point. Quite a few people are simply born with undersized esophaguses and have to have dilations. For example, my BIL and a first cousin...

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Hi Earl, Thanks for your comments on my post - I agree with everything you’ve said. I don’t think I suggested that (esophageal) tumour shrinkage was guaranteed with radiotherapy, rather that “ There is a good chance the treatment will shrink the cancer allowing your husband to eat normally, so it’s worth accepting within reason any side effects the treatment causes.” This statement was made in response to cottonsunflower’s concern there would be scarring and swelling, further occluding her husband’s esophagus. I hope this clarifies any misunderstanding. Regards Geoff

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well i guess that radiation therapy is different now from when i had it in 2013 i was diagnosed with stage 4 i had alot of chemo and radiation twice a day for 6 weeks every day and it was pretty horrible but what i understand they dont do it like that anymore of course i had my esophagus ,my stomach ,gall bladder,and alot of lymph nodes .They did try to make a pouch like thing for my stomach but it didnt work out but as far as the radiation goes theres alot of pain involved but its not painful recieving it i hope he beats it

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Profile picture for Colleen Young, Connect Director @colleenyoung

@cottonsunflower, thinking of you as you and your husband prepare for radiation starting on Monday. What foods have you stocked up with in the pantry? How are you feeling?

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@colleenyoung his radiation start was put off until the 30th, insurance problem, I think. We went last week for the mapping and that has all been completed. We have purchased protein shakes, fruit items such as apple sauce and nectars, juices, and soups. Right now he has been pretty good with mashed potatoes, spaghetti o's, and other soft things. He is to the point of throwing up pretty much every meal, it doesn't matter what it is. Last week he ate a little bit of a hamburger steak with mashed potatoes without issue, then he had a brownie for dessert that completely caused a lot of problems. We were ready to get this going!

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Profile picture for jimmyd4 @jimmyd4

well i guess that radiation therapy is different now from when i had it in 2013 i was diagnosed with stage 4 i had alot of chemo and radiation twice a day for 6 weeks every day and it was pretty horrible but what i understand they dont do it like that anymore of course i had my esophagus ,my stomach ,gall bladder,and alot of lymph nodes .They did try to make a pouch like thing for my stomach but it didnt work out but as far as the radiation goes theres alot of pain involved but its not painful recieving it i hope he beats it

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@jimmyd4 Thank you, at this point I am just hoping for some relief for him.

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Profile picture for lionsfan @lionsfan

@brucekn
Lucid http://www.esoguard.com
has developed a test for diagnosing esophageal cancer. It's easier access and can be done at home for those with a higher chance of esophageal cancer.

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@lionsfan That is great, I am glad science is moving right along.

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