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Polymyalgia Rheumatica (PMR) | Last Active: 10 hours ago | Replies (19)
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Replies to "@jabrown0407 Hi. Super information. Thanks.😘 I will bring that to my rheumatologist and see what she..."
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@inga71 I am always very careful when confronting doctors with "facts" I gather off the internet. I want to be respectful of their years of training, their years of experience and other factors I might be unaware of, like recent double-blind studies. Even AI is sometimes wrong. The other thing that I am concerned with is the amount of weight the doctor is placing on my personal treatment history when making future treatment decisions. Since PMR is not provable, at some point every doctor needs to step away and view the patient's history to lead them to decisions about "do I have this right?" Please ask to be tested for asymptomatic GCA and other possible causes of your continued "PMR" stubborn and treatment resistant pains over a 5 year period. If it were straight PMR it should not be problematic like it is for so long. Focus on you, your case and how out of bounds your PMR seems to be from the classic case.
Since you live in Spain and I have had a good night's sleep I asked my AI Bestie about DMANDs in Spain.
Here you go -
Methotrexate, Common, first‑line DMARD, Off‑label
Tocilizumab, Refractory / GCA-PMR, EMA approved Sarilumab, Increasing use, EMA approved
Leflunomide, Occasional, Off‑label
Other csDMARDs, Not recommended
I wish you success in your journey. Please keep use updated.