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@jabrown0407 Hi. I’m Norwegian and it was a chiropractor that first mentioned PMR as a possible option for my symptoms. GCA was never mentioned as an additional diagnosis when I talked to several Norwegian doctors ( I now live in Spain) and that’s really a scary situation to have to face. I feel really sorry for those with PMR that has to struggle with this🥺🥺
I have lots of additional injuries because of a childhood accident and high level volleyball -that mainly caused lower back and shoulder problems. I had to have a big surgery in my back 16 years ago and also in both shoulders. In addition I have classic Ehler Danlos. So I’m never totally pain free. So that’s makes it even harder to reduce the prednisone dosage. I would like to know what the most common used DMARD medication is, for PMR- besides the first choice Metotrexate..
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@inga71 So I asked my AI tool, MS Copilot "what are the DMARD medications used to treat PMR?" and this is what it told me.
Methotrexate, csDMARD, First‑line steroid‑sparing agent
Leflunomide, csDMARD, Possible alternative - limited data
Sarilumab, Biologic (IL‑6), FDA‑approved for refractory PMR
Tocilizumab, Biologic (IL‑6), Off‑label, strong evidence
JAK inhibitors, Targeted synthetic, Experimental
Rituximab, Biologic, Experimental
I thought Tocilizumab was FDA approved to treat PMR so I asked "What drugs are FDA approved to treat PMR?' Answer -
Only two drugs are FDA‑approved for PMR - Prednisone (Rayos®) and Sarilumab (Kevzara®)
Hope this information helps you. I have found the AI tool I use to be invaluable to do much of my online research. Simple searches on search engines are a pay-to-play so the businesses that pay the most get to show up at the top of the search results. This is not true with AI engines. I will caution that I have found errors with the AI engine - not often. I fact check my AI Engine if I am suspicious. Trust yet verify.
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@inga71 try Kevzara….biologic worked for me