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Deidre77 avatar

Does bladder cancer treatment continue ad infinitum?

Bladder Cancer | Last Active: Jun 3 12:45pm | Replies (15)

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Profile picture for Colleen Young, Connect Director @colleenyoung

@deidre77, how did the fifth installment go? Were you able to raise your question about how long treatment will continue for you with your oncologist? What did you learn?

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@colleenyoung
Thank you for your interest. I hope all aspects of your life are going well.

I actually had my 6th (final) BCG instillation this past Thursday. Following both my 5th and 6th treatment, I had bleeding for a while and then it stopped. I developed right side pain after 3rd, 4th, 5th and 6th time. As with previous after effects, I had urinary incontinence for a couple of days which prevented me from going outside.

My urologist scheduled a cystoscopy in a month to check. I have this sense that somehow this BCG regimen will not circumvent new tumors from surfacing. I hope I am wrong.

On a lighter note, I was surprised when my urologist enters the room where I am now in a gown and ready for my treatment --- with a cd player. He announces "today is your graduation" (from 6 sessions of BCG). He then begins to play the familiar college graduation song. Goodness, gracious! I immediately began to smile as I listened. This, needless to say, was the highlight of my last visit for a while and he wished me "good luck".

I am physically exhausted and spent a good part of the day yesterday sleeping. Perhaps a younger person fares far better than I having these collective BCG sessions.

At any rate, I will see what comes next.

My doctor told me that if I wished, he would send me to a hospital for the blue light cystoscopy since I had mentioned this. I actually declined because I felt I did not have the energy to enter a new facility and all which would have been involved in the process.

Soooo - in a month I will see what the standard, white light cysto reveals (Oh...I hope, hope, hope it shows nothing!).

Wishing all members continued hope and rays of sunshine and joy in their lives.