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Profile picture for Ginger, Volunteer Mentor @gingerw

@vijay26 I can only speak for myself. Live each day as fully as possible. Some days it takes a lot of energy just to get out of bed. Find joy each day, doing something that feeds your soul. It doesn't have to be the same thing each day. Aim for quality of life, not quantity. Do something for others; it makes you feel good about yourself!

My situation is this: I have a non-curable blood cancer called multiple myeloma. I also have end stage renal dis-ease, and am on dialysis everyday. I cannot get a kidney transplant because I would need to get a stem cell transplant for the myeloma first. Except we have determined I would not survive that stem cell transplant. So, my treatment involves dialysis everyday plus the myeloma treatments for the rest of my life. Unless a sudden cardiac event occurs [did I mention that is a complication of my dialysis?] I will eventually decide "no more", and stop everything. There is a DNR in place, and on file with all medical facilities plus on my medical alert bracelet.

It takes a fortitude of belief in yourself, and what mark you want to leave behind, to continue on each day. We all get that. I believe we honor ourselves when we do.
Ginger

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Replies to "@vijay26 I can only speak for myself. Live each day as fully as possible. Some days..."

@gingerw I am very sorry.to hear about all the things you have to deal w every second of the fay. I will pray for uou.
When so many things are going wrong, how do you find quality of life, happiness.or joy?
Please guide this 75 yr old w cancer and contractor's from make stroke.
Thanks Ginger. I love the name Ginger.
W regards,
VJ