Hubby’s Exhausted

Posted by anything4him @anything4him, 4 days ago

Hi everyone,
Wife here! Some of you may remember me from before asking questions. Hubby has had the trifecta thrown at him since his original diagnosis. Radical Prostatectomy, rounds of EBRT, and has been on Abiraterone, Orgovyx and Prednisone for six months now. The docs just added Myrbetriq, and Effexor-XR.
He has incredible fatigue. We go for daily walks and do some light weights etc. He eats healthy. Bloodwork is good. But wow - the level of exhaustion that is not helped by sleep. How are you managing that? I’m sure the level of fatigue hits different between everyone but if you are super exhausted I’d love to hear any suggestions that have worked for you.
Much appreciated!

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Profile picture for peterj116 @peterj116

Lovely to hear from you again - but not good that hubby is getting tired.
Quite common. I'm full of beans in the morning, but pretty worn out by about 3pm.
But 8pm, I'm shuffling around the house like a pensioner.

Walking is always the best exercise, though - but make sure it's in the morning, before his body realises that he's not 20 anymore.

It's a well-known fact that activities that can exhaust a prostate cancer patient the most include doing the dishes, helping make the bed, hanging out laundry, cooking & clothes shopping.
So make sure he's spared of these damaging activities.

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@peterj116 Hi! He does get spared those damaging activities! I try to get him to use whatever energy he has toward walks & exercise.
“ But 8pm, I'm shuffling around the house like a pensioner.” Thanks for the laugh - we are all doing the same here!

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Profile picture for anything4him @anything4him

@northoftheborder Thanks!
Aren’t those meds for when you become resistant to the current ADT meds he’s on?
Currently he’s responding very well to his meds - they’re just a lot to handle. I’ll read back up on that.

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@anything4him If it's working well, don't switch, obviously, unless the side-effects become unbearable.

The old thinking was to start on Abiraterone and the switch to a -lutamide when Abiraterone stopped working. That's been shifting recently, based on various big trials, to starting on the most-effective drug (the -lutamide) right from the beginning, since that's when it will give you the biggest benefit.

As Jeff mentioned, IF you're going to sequence, a -lutamide may work after Abiraterone, but less likely the other way around. The article he cited doesn't suggest that sequencing is better (or worse); it just deals with the order if you decide to do it.

Unfortunately, you might not get the full benefit of the -lutamide if you already became castrate-resistant on Abiraterone, but this is still very much under study and in flux.

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Beware of the price of Nubeqa vs. Arbiterone. It’s 15,000/ month.

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Profile picture for ecurb @ecurb

Beware of the price of Nubeqa vs. Arbiterone. It’s 15,000/ month.

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@ecurb Many of these medications are so expensive. I was able to get discount cards for his meds so far, even his Prolia shot. It seems you need to have commercial insurance for most of these discounts though.

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Profile picture for ecurb @ecurb

Beware of the price of Nubeqa vs. Arbiterone. It’s 15,000/ month.

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@ecurb wonder what the final negotiated price is after all the fluff and puff...I imagine it costs Bayer maybe $100 bottle max ( 120 pills) ..price is a moving target ...cost with insurance/without..subsidized..etc

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Profile picture for xahnegrey40 @xahnegrey40

@ecurb wonder what the final negotiated price is after all the fluff and puff...I imagine it costs Bayer maybe $100 bottle max ( 120 pills) ..price is a moving target ...cost with insurance/without..subsidized..etc

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@xahnegrey40 The hospital is assisting my friend Gary, whose taking Erleada. He had it metastasize to his brain/ spine. Erleada is working: last PSA -< .O3. Our society is transitioning over the last few years to the HAVE/HAVE NOT people. Greediness is still growing= two class society.

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Profile picture for ecurb @ecurb

Beware of the price of Nubeqa vs. Arbiterone. It’s 15,000/ month.

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@ecurb
Last retail price on my delivered Nubeqa was $12.600. Since I’m on Medicare, the maximum of my pay for drugs all year is $2100.

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Profile picture for peterj116 @peterj116

Lovely to hear from you again - but not good that hubby is getting tired.
Quite common. I'm full of beans in the morning, but pretty worn out by about 3pm.
But 8pm, I'm shuffling around the house like a pensioner.

Walking is always the best exercise, though - but make sure it's in the morning, before his body realises that he's not 20 anymore.

It's a well-known fact that activities that can exhaust a prostate cancer patient the most include doing the dishes, helping make the bed, hanging out laundry, cooking & clothes shopping.
So make sure he's spared of these damaging activities.

Jump to this post

@peterj116

😂😂😂

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Profile picture for jeff Marchi @jeffmarc

@ecurb
Last retail price on my delivered Nubeqa was $12.600. Since I’m on Medicare, the maximum of my pay for drugs all year is $2100.

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@jeffmarc you ve got good insurance- low deductible maybe.

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Profile picture for ecurb @ecurb

@jeffmarc you ve got good insurance- low deductible maybe.

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@ecurb
Not a low deductible it’s how Medicare pays for prescription drugs.

Last year the maximum you had to pay If you were on Medicare was $2000 this year it’s $2100.

In January when I placed my first prescription for Darolutamide, they charged me $2098.50.

That left $1.50 to pay for my Orgovyx prescription. Since then, I have not paid a penny for any prescription drug.

It doesn’t have anything to do with your insurance company. It’s what you pay when you are on Medicare.

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