@briana311
I was diagnosed two years ago. The primary was near my small intestine. The biopsy showed it a lower grade, but after surgery, it was determined to be a grade 3 well differentiated. This fall I was diagnosed with a reoccurrence. as a tumor near where the original site was as well as one in the liver. A liver biopsy confirmed again that it’s grade 3 well-differentiated.
I did three rounds of capicitaben and temlizide. I had a lot of G.I. symptoms, severe pain in my esophagus and colon spasms. Because of low blood counts, low platelets, first cycle low white blood count second cycle they reduced the democide in those cycles.
Now I’m on second cycle of fol fox. The neuropathy in my hands has been my primary complaint, although I have pain in my joints in particularly my jaw and thumbs.
I’ve just discovered from a bone scan that I have osteopenia. Previously, I had excellent bone health.
@djchambers
Do you know your dosage on CapTem? And what it was lowered to? The way my relative feels after 4 days off Capecitabine I doubt she will take again unless Dr can explain a lower dosage will decrease symptoms by x % or which ones. I hope these side effects are truly from the Capecitabine and not tumor growth ( PET scan mid Feb showed very low metabolic activity and feeling good up until end of last week toward end of cycle 1). Eating very little and still vomiting even with anti nausea meds.