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Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: 3 hours ago | Replies (19)

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Profile picture for ropnrose @ropnrose

I'm sorry that you have joined the PMR club. I started on 60 mg. of Prednisone in July 2024 for PMR and GCA. By the time my taper got me to 10 mg/day in November 2024, I was starting to have a flare again. I couldn't get below that doseage without increased pain. In January 2025, I began monthly Actemra infusions. They helped me taper off of Prednisone (November 2025), without any flares. Since, December 2025, I have been having bilateral pain in my knees, shoulders, and wrists. I have an appt. with my rheumatologist in May to discuss. In the meantime, I'm taking extended release Tylenol.

I urge you to tell (don't ask) your doctor, that you want to try a biologic. Actemra isn't approved for PMR, but some doctors do prescribe it. Most people go with Kevzara.

Good luck.

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Replies to "I'm sorry that you have joined the PMR club. I started on 60 mg. of Prednisone..."

@ropnrose Also, please consider seeing a knee specialist. I have bilateral knee pain and was Dx with osteoarthritis. My knee ortho treats me with semi-annual hyaluronic acid. That is the gel you hear advertised on TV, it works great. I also have bilateral osteoarthritis in y shoulders per the x-rays and my shoulder ortho. They treat that with steroid injections and about once a year I private pay to get hyaluronic acid injections. The US is the only country in the world that has not approved hyaluronic acid for shoulders. That works for me also. You might consider a hand specialist to check out your wrists to see what is really going on. Rheumy do not investigate pains individually, you can.