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Profile picture for tweetypie13 @tweetypie13

@kjoed53 ouch…..been there done that and it’s very lonely.
You are not alone, you are your own best advocate.
Ask your dr…..some things you’ll learn from this group, ask anything, someone will have similar experiences.
I.e., It takes awhile to adjust meds. I had to split the dose so when i woke up in the morning i was not in such pain. Also, sometimes you have to go up, in order to go down in dosage. Chase the Dr. keep a journal of daily meds, pain level and activities.
Lastly, hang in there…your daughter is your goal!

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Replies to "@kjoed53 ouch…..been there done that and it’s very lonely. You are not alone, you are your..."

@tweetypie13
Thanks tweetypie, I am my own advocate. I've seen 7 doctors so far and I have been lucky that I've not had to wait months between them. I'm a little concerned that I may need to find another rheumatologist if the prednisone doesn't work and he sends me back to the neurosurgeon who sent me to him.