@inga71 Such a bummer. Yes, there is little known abt this insidious disease.
I did not have any underlying conditions, or take any medications for other issues.
I was told as follows….at doses below 10mg…
Be pain free for at least 3 weeks, then taper no more than 10%, again be pain free for 3 weeks. As doses got lower it was harder, so I tried the alternating method, i e day 1 5 mg, day 2 4 mg, day 3 5 mg day 4 4 mg…which equates to a dose of 4.5 mg.
Also distinguish between PMR pain and body hurting is a challenge.
As mentioned, an anti inflammatory diet, and movement….. I was sent for Aqua PT which led me to get back in the pool and walk, low impact.
Maybe find another Dr.? Good luck

@inga71 I wish I knew or you told us why the MD was against Kevzara. I went from 15 mg of prednisone to 2.5 without any problems. Going from 2.5 to 2 mg was a problem. I am currently on 2.5 for a while. If you go on Kevzara you will have blood draws every one to three months to monitor for blood problems.