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Share your test results (if you'd like)

Prostate Cancer | Last Active: 1 day ago | Replies (178)

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Profile picture for ezupcic @ezupcic

@handera, SDM seems like a reasonable approach given the complexity of Prostate cancer. If there is evidence that for example the MPS2 test or the PSE are problematic than one would think the urologist would explain why based on their practice. At this point I'm not sure how much stock to put into metrics like doubling time, density, Pirads scores, PSA scores or the results of any other biomarker test including a blind transrectal biopsy that might only sample 1% of an enlarged prostate but if it's about a patient's overall clinical picture, seems like more information from a variety of sources is a better way to go . Sometimes "SDM" just feels like "you have elevated PSA, lets Biopsy, and if you don't want to just know that you may be living with an undiagnosed cancer".

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Replies to "@handera, SDM seems like a reasonable approach given the complexity of Prostate cancer. If there is..."

@ezupcic

When I received my 7.8 PSA result in May 2023, I knew virtually nothing of the metrics you mention.

A mpMRI indicating three PIRADS lesions (3,4&5) elevated concern and I did not even question the need for biopsy…I was scheduled in two weeks.

It was only after receiving my favorable intermediate risk Gleason score that I started my research.

I had to ask for a genomic test. I initially asked for Polaris; but my urologist indicated that if we were to do one he recommended Decipher…that was a much better decision.

I had been leaning towards AS even before receiving my Decipher Score and the Decipher GRID report was even more informative, regarding the lack of aggressiveness in my situation. That metric provided confidence for my AS decision.

At that point, I had no information regarding post biopsy PSA doubling time or follow up mpMRI’s; but 2.5 years later these additional metrics have reinforced the Decipher test information.

It takes time to obtain a significant number of puzzle pieces regarding the status of one’s particular situation.

Every man has a different level of risk tolerance, so only you can decide if/when you have enough puzzle pieces to move confidently forward with whatever plan you and your physician decide will work for you and is acceptable with your doctor.