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Share your test results (if you'd like)

Prostate Cancer | Last Active: 1 day ago | Replies (178)

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Profile picture for handera @handera

@ezupcic

…the wheels of progress roll slowly, regarding standard of care protocols.

The trump card we hold is that many urologists now buy into shared decision making (SDM). If yours doesn’t, I’d find another physician.

20 years ago urological standard of care was to actively treat every man, no matter what their risk class….over treatment ran rampant.

Some of this mentality still exists, depending on the individual urologist.

Even today, it’s estimated that only 60% of men diagnosed with low risk PCa go on AS…this should be 95%+….there is still way too much over treatment of low risk men.

This means you still must be your own advocate and do your own research.

I ask my physician for specific biomarkers that I believe may help shape my decision making ability.

If you have a urologist that understands and practices SDM, you will usually get what you ask for, or possibly something even better…especially if your physician knows about these options based on his experience.

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Replies to "@ezupcic …the wheels of progress roll slowly, regarding standard of care protocols. The trump card we..."

@handera, SDM seems like a reasonable approach given the complexity of Prostate cancer. If there is evidence that for example the MPS2 test or the PSE are problematic than one would think the urologist would explain why based on their practice. At this point I'm not sure how much stock to put into metrics like doubling time, density, Pirads scores, PSA scores or the results of any other biomarker test including a blind transrectal biopsy that might only sample 1% of an enlarged prostate but if it's about a patient's overall clinical picture, seems like more information from a variety of sources is a better way to go . Sometimes "SDM" just feels like "you have elevated PSA, lets Biopsy, and if you don't want to just know that you may be living with an undiagnosed cancer".