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DiscussionLiver NETs: Anyone has extreme swelling in feet and ankles?
Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (37)Comment receiving replies
Replies to "@rcochran1 Hi and welcome to Mayo Connect. Since I am seeing more folks ask about Y90,..."
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@tomrennie The preparation for the Y 90 procedure itself was the biopsy and mapping with dye; all three under a light anesthesia, out patient in early morning and home by late afternoon. The entry used left a small opening covered with an ordinary size Band Aid and caused no pain for me. The isolation from humans/pets was for a few days. The information I received indicated that in a "few weeks," you'd be "back to normal." I found it more like 4 to 6 weeks with extreme fatigue [a term new to me], loss of appetite and weight. I am retired, but would have needed more than 2 weeks if I had to return to work teaching. Six months after the Y 90, my radiologist saw a small spot left on the liver in my scans and suggested she could "zap it" with a microwave ablation of liver. We did the ablation: outpatient, required full anesthesia, after effects of sharp pain in right shoulder- a "referred pain" [another new term] from nerve running up from liver. I mention the ablation b/c Y 90, unlike surgery with clean margins, is less precise and required this follow up. All credit to my radiologist who found the small spot b/c NET specialist and other oncologist saw it but did not mention the option of ablation. Ablation was not painless, but peace of mind that I had done all possible to "delete" the NET was worth it to me.