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DiscussionAnyone deal with pain post AUS 800 activation?
Prostate Cancer | Last Active: May 16 10:18am | Replies (17)Comment receiving replies
Replies to "Tough to answer without some further details. How many years leaking? How much leakage? Was it..."
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@grandpun thanks for your input…I appreciate your questions & support:
Yrs leaking: had the Radical Prostatectomy in 2015 had fairly light leakage ever since used light pads. Over the yrs leakage increased. 7 years after RP cancer came back located in Prostate Bed. Had radiation to knock it out in 2024…did the trick undetectable thus far. After radiation leakage persisted and got much worse (diapers, basically uncontrolled!) That brings us to the current dilemma.
Long story short, we’ve been grasping at straws…UTI (Nope) Kidney Stones (Nope) Taking drugs for bladder spasms (in Process) At my wits end I did a google search of Boston Scientific AUS 800 and complications; I recalled (this week) that upon activation of the device I was instructed to press the pump once to open the cuff. My search revealed the fine print in the device instructions indicate I should have been pressing the pump 2, 3 or 4 times until the pump was flat with a dimple fully opening the cuff. Since changing the routine urinary flow has improved, pain when peeing has subsided and my mental outlook has improved significantly. No Pain when peeing. A bit of mild discomfort in the area but probably due to irritation from reduced flow and strain due to partially open cuff.
I shared this with my Nurse Practitioner contact at my hospital and he indicated ‘gee I always told our patients one pump is sufficient’
Quite the saga…I generally trust and follow the advice of my Dr’s but there’s a saying ‘Trust, but verify. My hospital is always ranked in the top 10 nationally. I guess being proactive has its benefits. Been freaking out as we are going abroad in six weeks time which would not be possible if this problem were not rectified and trout season is just around the corner!