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Reclast infusion long term side effects
Osteoporosis & Bone Health | Last Active: 11 hours ago | Replies (62)Comment receiving replies
2 weeks before I was due for Reclast infusion I learned I needed a tooth extracted and a bridge put in. The endocrinologist said to not reschedule Reclast until all the dental work was completed. I come from a family of dentists and dental hygienists. They have all told me NOT to do Reclast. Even the oral surgeon that extracted my tooth was lecturing me (angrily) on not doing it. I have a temporary bridge right now and soon getting the permanent one put in and I have had a lot of time to think about Reclast and decided against it. The risk isn't worth the reward bcz there doesn't seem to be any reward in doing it! When I first saw my endocrinologist she asked me if I had heartburn or stomach issues and bcz I said I had heartburn she said I have no option but to do the Reclast. I am weary of this response also. How bad are the oral meds for us folks with occasional heartburn? Are the endocrinologists told to push the Reclast on their patients?
I have a bone scan and appointment with endocrinologist in May and at that time I have to re-evaluate this whole situation. I am having a hard time believing that there is a medication that can restore bone health. Can anyone make me a believer?
Replies to "2 weeks before I was due for Reclast infusion I learned I needed a tooth extracted..."
@tummis05 I would guess that if you already tend to get heartburn, beware of the oral meds…I am recovered from CRC and my oncologist advises against them, as I have a sensitive reconstructed gut. She wants me to do whatever I can to treat OP—BUT the choices are really not easy, and being on bone meds for life is very serious issue .
@tummis05 I also need a tooth pulled. I have been on Tymlos for 2 years, and the doctor will have me continue until the extraction has healed, before having me stop (2 years is the FDA approved max) and change to either Prolia or Reclast. I have been told by the dentist, the periodontist, and the endocrinologist that since I was on a bisphosphonate (Risedronate, oral) for 5 years prior to Tymlos, there is STILL a risk of jaw necrosis, because bisphosphonates actually stay in your bones for a very long time! I think Reclast is also a bisphosphonate. Anyway, I would say Tymlos or Forteo is a better gamble than Reclast or any bisphosphonate, as the first line of defense. It is an anabolic. I was too stubborn to go on any meds for the first 10 years after diagnosis, had considerable degradation of my spine, and finally went on bisphosphonates because I refused the anabolics. I wish I had done the anabolic first. That's my 2 cents!
@tummis05
I had 2 of the 3 Reclast imfusions. After the first, but before the second, I began having dental problems. At that time, I did not associate it with the Reclast. After my 2nd infusion, my dental problems escalated. I now have had both canines and a couple of other teeth removed. I currently have several teeth in stages of decay, along with teeth that are in various stages of breakage, and now my bridge is loosening. I can also feel with my finger, the bottom ridge of my teeth where the gum is receding. And, while not being actually diagnosed with it, it has been suggested that I may also have Osteonecrosis. Within the past few days, I have noticed a swollen gland right at my jawbone, which hurts when touched, and the pain goes up into my bone and teeth on that side. Needless to say, I refused the third infusion of Reclast, and am searching for a dental specialist (unsure of proper dental title). For diagnosis and treatment. I think you made a very wise choice to refuse Reclast!
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@tummis05 A 2025 overview of medications by a Dr Michael Lewiecki presented to doctors and researchers. Quite technical, but very helpful .
Treat-to-target for osteoporosis
Thanks again to the person on this forum who pointed out that there is a link to the slides & graphs there also so that you do not have to freeze the presentation and zoom into the video a bunch of times like I did 🙂 Further thanks to the person on this forum who first posted this link. Sorry I did not keep your names.