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Neuroendocrine Tumors (NETs) | Last Active: Aug 8, 2017 | Replies (7)
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Replies to "Hello Deb, @debf Interesting question that you posed. I assume that you know for sure that..."
He had stomach pain and diarrhea for 4 years (since 5th grade) and even after numerous tests, they were not able to figure out what was wrong. Then last June of 2016 he became Jaundice and they saw a mass in the head of his pancreas. They misdiagnosed it again as Autoimmune Pancreatitis and he was put on steroids. That didn't work so in November of 2016 he went to Mayo for a Whipple with Dr. Kendrick. During surgery they found the cancer and diagnosed it as pancreatic neuroendocrine cancer, unfortunately with metastasis to the liver. He is doing much better after surgery and no longer has pain, just occasional diarrhea. He is currently living life as a normal 16 year old, which we are extremely thankful for! Take enzymes when he eats, and is on the monthly Lanreotide shot.