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Just diagnosed with Meningioma: What do I need to know?

Brain Tumor | Last Active: 13 hours ago | Replies (27)

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Profile picture for dailygift @dailygift

@vernicek I had a repeat MRI 3 months after the first one that showed no change. With that result I felt confident in concluding that my best course of action is watchful waiting and repeating an MRI in 6 months. The 2 neurosurgeons that I meet were on board except one felt I should still have gamma knife BUT it would not be unreasonable to do watchful waiting. The important thing with watchful waiting is to have your repeat scan on time and continue to monitor for symptoms. Luckily at this time I don't have any. The reason one surgeon stated I should still have the procedure now is that if I have the procedure now (I have some edema ) my risk profile for having gamma knife is lowest now. If I need it in the future and there is more swelling I will be in a higher risk category for complications. My age is also a consideration, I am 73. If I need the procedure in 10 years I may wish I had taken care of it when I was younger. So there are unknowns in the equation. But I am content with my choice. How are you doing in this journey?

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Replies to "@vernicek I had a repeat MRI 3 months after the first one that showed no change...."

@dailygift

Thank you for your quick response. The left-side meningioma is abutting my carotid artery and optic nerve. I had a four hour neuro-opthamologist appointment last week at the UC Davis Medical Center in Sacramento. Dr. Liu was concerned about future loss of vision and a possible stroke and recommended Endonasal surgery to remove the tumor.

Today, I have an appointment with Dr. Kirash Shahlaie, the neurosurgeon who specializes in meningiomas at UCD.

After Easter, I have an appointment with Dr. Gordon Li at Stanford. He has a reputation for digging deep to determine the risk to benefits of neuro surgeries.

I will have a wait period of six months, have a second MRI, then make a final decision.

I am healthy in all other ways at 74. This is definitely not what I expected!

@dailygift Do not ignore any increase with your edema.