← Return to Pancreatic NETs: Looking to connect with anyone with insulinoma

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @sunflower1398, and welcome to the NETs support group on Mayo Clinic Connect. You are wise to be seeking a second opinion. I highly recommend obtaining a second opinion from a NET specialist. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.; https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

General oncologists aren't as well-versed in the latest treatments for rare cancers such as this one. I would also like to invite @ahtaylor to post with you. She has experience with insulinoma and has been actively involved in her treatment.

How do you feel when you exercise and have hypoglycemic episodes?

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Replies to "Hello @sunflower1398, and welcome to the NETs support group on Mayo Clinic Connect. You are wise..."

@hopeful33250 thank you. I cannot exercise. Any minor exertion,I start sweating and blurred vision. BS drops to the 30s. Have been mis diagnosed for over 10 years saying it was heat intolerance from MS or menopause.