@ktcosmos It's sad but SOME don't want to get it. I was amazed last year watching my good friend, neighbor, progress into this horrible disease, and her adult children, wanted to turn the other cheek. Her husband was in denial too, although, now, he's gotten her the level of home care she and (he) needs to help them. Good luck with your family discussions. I think what my husband and I realize, we're in this and not our adult children, which are just too far away to make a difference, and we have all boys, with working jobs, and young kids, where their wives are tied to her family.......and her mother's medical issues.

@ktcosmos, such a good question. I think it is important to first understand what YOU want and need to get out of the meeting. Imagine the meeting has happened. What will be changed because the meeting happened?
- Will you get more help?
- More understanding?
- Will family members understand better how they can help?

Or maybe the change will be that you've heard what others think. As a result, you may know who to turn to for what.

There's no right answer to the question. It just has to be right for you. Hopefully that will help you to have clarity about the purpose of the meeting and to share that with everyone.