@jayace2430 hi I had surgery in 2009 I had to have part of my liver removed along with several tumors 4 were left to deep to get also had 3 in small intestine removed. The outcome was good.

@jayace2430

@jayace2430 I sincerely hope your wife’s meeting went well? Those early meetings were a little overwhelming for my spouse and I as we tried to get our heads around NETS on an intellectual and emotional level. I’m glad I had surgery and have been as aggressive medically as I can be. After surgery in 2020 to remove that one tiny tumour that had been accidentally found when looking at a scan for another minor ailment, I was clear of NETS until 2023 when it reemerged. Not a good day. I don’t regret having surgery as I feel that I need to be as aggressive as possible medically, within reason, to give myself the best chance to live a long life. I have a multidisciplinary medical team that meets to discuss my case when there is change and I have been guided mostly by that team as to my treatment since 2023. A family member is a well-respected surgeon and I discuss issues with him also. I have had few symptoms except with my prrt treatment I suffer from fatigue. Although usually active, I have had to rest everyday after prrt.

@jayace2430
You might find it helpful to read @shirleyslominski's post below. https://connect.mayoclinic.org/comment/1529589/